Our family’s story is one of resilience, determination, and an unshakable hope. We are the parents of two beautiful children, Antonia, 16, and David, nearly 4. Both of them are bravely fighting against a rare and challenging genetic condition: the SUCLG1 mitochondrial mutation. This journey has tested us in unimaginable ways, but it has also revealed our inner strength and

Tucker was born in September of 2021 after a healthy pregnancy and smooth delivery. He was perfect on the growth charts and we were over the moon as first time parents. In Tucker’s first year of life, he had some feeding issues and muscle issues that were written off as “normal” baby issues and that he would outgrow them or catch

On April 11, 2022, I found my son Sarhan going unconscious and vomiting nonstop, we rushed to the hospital and found he was having a seizure, after several visits to doctors we came to know he is having POLG Mitochondrial disorder which we never heard about. Every day he faces new challenges like managing energy levels, dealing with body jurks, seizures

I would like to introduce to you My Son, My First Love and Last Love, Branden Christian Petro.  He is my heart and soul and he is the light when it is so dark and he is what makes our heart beat everyday. He is Branden The Brave.  I miss his smiles, kisses, laughter, funny faces and but most of all

On December 31st, Harper’s mom, Liz, had to be at work by 7am and Harper was sound asleep in her bed. Usually Harper wakes up by 8am, but Harper’s dad, Dave, had a gut feeling to go into her room a little earlier to check on her, and found her unconscious and not breathing. Life saving measures were taken and